We spoke with Deputy Health Minister Maciej Miłkowski during the Economic Forum in Karpacz about the changes introduced in the treatment of rare diseases by the September list of reimbursed drugs, the work related to the November list, and the needs of patients with neurofibromatosis.
Economic Forum in Karpacz
Maciej Miłkowski: There are more and more narrow indications in rare diseases
Published Sept. 7, 2023 10:58
Maciej Miłkowski:
- In rare diseases, there are more and more narrow indications for specific genetic types.
- The November list of reimbursable drugs is being worked on. I hope something else will change regarding breast cancer treatment.
- In the case of cystic fibrosis, we are waiting for the extension of reimbursement and are in talks all the time. Perhaps in September we will be able to complete them.
- In September we finish all negotiations, October will be the time for organizational work.
- For neurofibromatosis, centers of excellence are needed, and they are. We received a proposal that 2-3 more such centers should be there. The most important thing now was to extend the pilot, which will allow us to think about organizing more centers.
- We will be looking into the possibility of introducing the first therapy for neurofibromatosis type 1 patients with inoperable tumors.
