The World Health Organization has launched a global study of the life experiences of people diagnosed with cancer. The results are expected to be used to create better and more effective support mechanisms. The survey is part of a wider campaign that includes the organization of national consultations, the presentation of best practice and the implementation of targeted initiatives.
WHO wants to listen to the voice of cancer patients. A global experience study has begun
Published Oct. 19, 2022 08:18
© WHO/Gilles Reboux
As WHO points out, almost every family around the world is affected by cancer. One in five people is diagnosed with cancer during their lifetime. We also deal with oncological diseases as caregivers or family members of patients. The diagnosis is a great psychological burden for both the patient and his family.
- For too long, cancer control has focused on clinical care rather than the broader needs of people affected by cancer. Global cancer policy must be shaped by more than data and research. It must take into account the voices of those affected by the disease, says Dr. Tedros Adhanom Ghebreyesus, director general of the World Health Organization. "".
Research cited by WHO shows that nearly half of people diagnosed with cancer experience anxiety and loss of self-confidence. It also often happens that she is abandoned by her partner. The disease also affects the economic situation. In low- and middle-income countries, financial difficulties and loss of assets can occur for at least 70% of people. people.
- When my daughter was diagnosed with cancer, our life changed drastically and in ways we didn't expect. The effects of cancer are lifelong, said Ruth Hoffman, president of the American Childhood Cancer Organization.
Understanding the experiences of people affected by cancer can help create more effective support systems. However, the needs of people with cancer and their caregivers are often unknown. For this reason, WHO is launching a campaign one element of which is to conduct a large global survey of people diagnosed with cancer.
- This campaign will include four steps: publish a global study, organize national consultations, present best practices, and implement community-led initiatives. We are ready to open a new chapter and improve the well-being of people affected by cancer, explains Dr. Bente Mikkelsen, director of the WHO Department of Non-communicable Diseases.
The organization wants to reach 100,000 with the questionnaire 100-country respondents, most of whom live in low- and middle-income countries. The survey results are expected to be known in early 2023 and then used to shape policies, programs and services for people affected by cancer around the world.
Actual. based on: WHO
