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Rare Disease Information Platform is now up and running

MedExpress Team

Piotr Wójcik

Published Oct. 18, 2023 11:44

Rare Disease Information Platform is now up and running - Header image
- We need to build public awareness of rare diseases. We want the platform to be created by experts who deal with rare diseases in cooperation with NGOs," said Health Minister Katarzyna Sójka during a meeting with the Rare Diseases Council. The information platform, which is one of the goals of the Rare Diseases Plan, has been in operation since Wednesday.

- The Rare Diseases Information Platform is a comprehensive source of information primarily for patients and their families, but also for health care professionals and public institutions, said Health Minister Katarzyna Sójka.

As Prof. Anna Kostera-Pruszczyk of the Rare Diseases Council noted, work on the platform had been going on for more than a year.

- Together with the Ministry of Health, the e-Health Center and experts from a number of centers - both those that alread...

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