An exceptional time!
The first edition of "Weekend with SMA" was held in May 2013. Since then, the event has already become a permanent fixture on the calendar of important dates for spinal muscular atrophy patients, their families, the SMA Foundation and prominent specialists who educate conference participants free of charge every year. 10 years ago, the main goal of the SMA Foundation was to integrate the community of patients with spinal muscular atrophy and support them in the absence of treatment. The following years were a time of hope and waiting for a breakthrough in SMA drug research. When the first therapy for SMA appeared, in addition to joy, we felt that it was a success for our entire community. Even then, our efforts focused on bringing SMA testing to newborn screening. Today, 67 children have already been diagnosed from this program. Revolutionary changes have brought more drugs for SMA, and access to several therapies has allowed patients and their loved ones to change their outlook and plans for the future.
We still have the most difficult work ahead of us to implement coordinated care and hopes for more drugs, this time to strengthen muscles. Quality of life for our patients is our priority. At Weekend with SMAk, we have the opportunity to share knowledge, new technologies and therapies, and everyday solutions. Integration combined with education, gi... To gain access to the complete English section of the Medexpress.pl, kindly reach out to us at [email protected].Content locked
