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The Ombudsman will continue to intervene in the matter of gene therapy

MedExpress Team

Medexpress

Published Aug. 31, 2022 13:18

The Ombudsman will continue to intervene in the matter of gene therapy - Header image
Fot. Getty Images/iStockphoto
From the point of view of the Commissioner for Human Rights, the issue of the age restriction in access to gene therapy is not over, said Stanisław Trociuk, deputy Ombudsman, during the Tuesday meeting in the Sejm, devoted to the problem of access to reimbursed gene therapy in the treatment of SMA.

A meeting on the extension of the reimbursement criteria for gene therapy in SMA with the participation of parents of children suffering from spinal muscular atrophy was organized by the leader of PSL, Władysław Kosiniak-Kamysz. Stanisław Trociuk, the deputy of the Human Rights Defender, also took part in it, but there was no representative of the Ministry of Health. After the meeting, the Minister of Health Adam Niedzielski commented on its course on Twitter, describing Kosiniak-Kamysz a cynic and accusing him of playing on "the lowest human feelings".

The subject of the meeting - and mutual accusations (Kosiniak-Kamysz reciprocated Niedzielski...

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