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This disease takes away the will to live

MedExpress Team

Published Feb. 12, 2024 10:30

This disease takes away the will to live - Header image
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Multiple crippling surgeries, complications such as optic nerve damage, meningitis or brain abscess, painful erosions, difficulty breathing and endless infections, as well as sinus-shattering pain, loss of smell and taste - these are just some of the problems that patients with the most severe form of chronic sinusitis with nasal polyps live with. - For the most seriously ill patients, who have exhausted all therapeutic options and even their doctors are spreading their hands out of helplessness, biological treatment is needed as soon as possible.

Only in this way will their lives full of pain and suffering be able to return to normal. They will finally be able to live and function normally both professionally and socially, without generating the unnecessary costs of the multiple surgical treatments used so far, which are burdening the system," appeals Hubert Godziątkowski, president of the Polish Atopic Diseases Association (PTCA), initiator of the "Do you have it in your nose?" campaign. - I believe that - as in the case of atopic patients - patients with chronic sinusitis with nasal polyps will also be able to count on positive decisions from the Ministry of Health, and their daily drama with the April announcement of the reimbursement list will finally end.

The most severe form of chronic sinusitis with nasal polyps is an ongoing drama for affected patients and a never-ending battle.

- I have been suffering from chronic sinusitis with nasal polyps for 26 years and I don't know what to do anymore. I've already had 17 treatments. I remove the polyps, and they still grow back, remove again, grow back again. And that's the worst thing with me: that these polyps grow back so much. I can't breathe through them, a tragedy. Sometimes, when I start to choke and can't breathe, and the date of the scheduled treatment at the National Health Service due to queues is far away, then I go privately to a doctor who helps me on an outpatient basis - he trims them with a shaver - but always says that this doesn't take care of the problem, that the polyps are not removed completely. Eac...

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